Writing is Therapy
Carl has CMT. It is a lifelong inherited progressive disease. Writing about it is therapy for Carl.
This is Part 8 of my notes about my recent open heart surgery. To read what has come before use these links: Part 1 – Part 2 – Part 3 – Part 4 – Part 5 – Part 6 – Part 7 I had my Quadruple Bypass Open Heart Surgery on a Thursday Morning. Four days later, on Monday, the doctors were ready to … Read more
This is Part 6 of my notes about my recent open heart surgery. To read what has come before use these links: Part 1 – Part 2 – Part 3 – Part 4 – Part 5 After getting situated in the inpatient rehabilitation hospital I was ready for continued healing/improvement. Days after the surgery I became aware that my … Read more
This is Part 5 of my notes about my recent open heart surgery. To read what has come before use these links: Part 1 Part 2 Part 3 Part 4 I have an inherited disease that causes neuromuscular atrophy. The disease is called Charcot-Marie-Tooth disease (“CMT”), named after the three physicians who first described it: Drs. … Read more
A year ago I wrote about the Lost Year of 2020. Now here we are with 2021 ending and the Pandemic is still with us, although with a more positive outlook. I have had 3 Covid shots now. And the more I hear and read it appears the shots will become a repeating theme in … Read more
They say “knowledge is power.” Power for what is left blank. In the case of coping with a syndrome that continues to progress, demanding more and more attention all the time, the power is in part to control the depression and anxiety new symptoms can bring about. I’ve written before about my having CMT. I … Read more
My new shoes arrived yesterday, and they fit! They are a full size bigger than normal for me, and I was able to order them wide, so they are very comfortable. They are called an “un-sneaker”. I didn’t like the texture in the photograph, I just wanted smooth black shoes. But it turns out the … Read more
In mid-September I realized that for all the energy I was expending while I was walking that I didn’t get very far. That’s when I noticed there was a crack in my ankle foot orthotics, one each foot. The crack was in the post that connects my legs to the support under my foot. It … Read more
The last time I wrote about my challenges with Charcot Marie Tooth Disease (CMT) was in September. And at that time I purposed to set it down for a while and think about other things. It’s been five months. I’ve done well, but CMT is still very much a part of my life. Since September … Read more
It’s been three months since I wrote about getting new ankle foot orthotics (AFO’s) and getting hearing aids. Having visited the specialist at John’s Hopkins University and following through on the direction and advice I obtained from the neurologist there, I’ve been working hard to push forward. And forward I’ve moved. My new AFO’s have … Read more
I got my new ankle foot orthotic braces Monday. They are made by a company called Allard. The particular model is called Toe Off. They are light weight carbon material with a flat slab under my feet, a narrow bar vertically on the side up out of the shoe, and pads that strap to the … Read more